Governance
Participation that shapes our work
Executive Committee
Scientific Steering Committee
PwMS Engagement Coordination Team
People affected by MS help guide the direction, priorities and scientific work of PROMS.
Our participatory governance brings together patient organisations, researchers, clinicians and other stakeholders. It creates space for lived experience alongside scientific and professional expertise.
The Engagement Coordination Team (ECT) supports this approach. Its members contribute to the working groups and ensure that the perspectives of people living with MS inform the initiative.
The ECT model draws on the EU-funded MULTI-ACT project, which developed guidance for representative and inclusive patient engagement.
A global collaboration
European Charcot Foundation
MS International Federation
Italian MS Society
United States MS Society
Canada MS Society
UK MS Society
South Africa MS Society
Université de Lille
Universität Düsseldorf
Università di Firenze (ITA)
VU University Medical Center
Critical Path Institute
Universiteit Hasselt
Novartis
EMD Sereno Inc.
Merck
Biogen
Roche
Sanofi
Genentech
Modus Europe
Hospital Italiano
Università degli Studi di Milano Bicocca
Region Hovedstaden
Queen Mary University of London
The University of East Anglia
Universitätsspital Basel
Imperial College London
KU Leuven
University of California San Francisco
IRCCS Ospedale San Raffaele Milano
Northwestern University
Accelerated Cure Project
Centre Hospitalier Universitaire de Rennes
İstanbul Üniversitesi
MS Australia
