PwMS Engagement Coordination Team


The Engagement Coordination Team (ECT) is a critical component of the PROMS Initiative’s participatory governance framework. The PROMS Initiative recognizes the importance of engaging patients in the research and care continuum and has established an innovative framework to facilitate this engagement. Within this framework, patient advocacy organizations play a vital role as boundary organizations between science and society, and are instrumental in defining and implementing effective patient engagement practices.

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Helga Weiland

ECT Co-Chair

South Africa MS Society

Emma Grey

ECT Co-Chair

UK MS Society

Michael G. Thor

ECT member

MS International Federation

Ainhoa Ruiz Del Agua

ECT member

Asociación de Esclerosis Múltiple de Bizkaia (ADEMBI)

Susanna van Tonder

ECT member


Angela White

ECT member

MS Ambassador of the National MS Society (US)

Marni Hall

ECT member


Joanna D. Skrzypczak

ECT member

Centrum DREWS

Guy Peryer

ECT member

University of East Anglia