𝗪𝗚𝟯 (𝗘–𝗵𝗲𝗮𝗹𝘁𝗵) seeks to identify eHealth tools (for both active and passive remote data collection) to facilitate the adoption of PROMs in MS research, clinical trials and clinical management.
- To establish current eHealth return of investment for all the stakeholders engaged;
- To enable the long term benefits afforded to patients (active versus passive), clinicians and other stakeholders by e Health;
- To collect landscape data on the current use of PRO data collection technologies, with particular emphasis on MS-dedicated instruments.
PROMS Initiative interview
Letizia Leocani, associate professor of neurology in Milan (Università Vita-Salute San Raffaele) with expertise in technologies for monitoring and rehabilitation of people with Multiple Sclerosis, is one of the co-leaders of the eHealth Working Group (WG3) within the multi-stakeholder PROMS Initiative.
The eHealth Working Group is focused on making digital technology available to people with MS for monitoring their symptoms, function, and overall well-being. Digital tools offer not only the possibility to perform tests or fill out questionnaires but also to passively monitor without the individual being aware that measures are being collected.
- Development of a Landscape Analysis of available eHealth tools, methods and devices, designed and currently being tested or used to collect PROMs for MS.
- Digital health companies, organisations and projects that are employing relevant tools can apply to join the Catalogue following the instructions provided in this Invitation Letter: here