Videos & Interviews

Robert McBurney – WG2 Co-Leader

Chief Research Officer of Accelerated Cure Project for Multiple Sclerosis (APC), a national non-profit organization dedicated to accelerating efforts toward a cure for MS by rapidly advancing research that determines its causes and mechanisms, is one of the co-leaders of the Clinical Management Working Group (WG2) of PROMS Initiative.

Usman Khan – WG4 Co-Leader

Professor at Katholieke Universiteit Leuven and co-chair of PROMS Initiative Working Group 4. This group focuses on how PROMS can be integrated into policy-making processes, which is a relatively new space. Usman’s role is to understand stakeholder groups’ understanding of PROMS and to connect that to determine their interest in using PROMS for policymaking processes

Ainhoa Ruiz Del Agua – ECT member

The patient plays a key, central, and constructive role within the PROMS Initiative. This was one of the most significant passages of the speech by Ainhoa Ruiz Del Agua, a member of the Engagement Coordination Team (ECT), who described, during the conference promoted by the Eugenia Epalza Fundazioa (Esclerosis Multiple Euskadi) within the framework of the #WorldMSDay last 30th May, her first-hand experience and the next steps in the field.