Governance
Engagement Coordination Team
Bringing the lived experience of people affected by MS into every stage of the initiative.
The Engagement Coordination Team (ECT) is a critical component of the PROMS Initiative’s participatory governance framework. The PROMS Initiative recognizes the importance of engaging patients in the research and care continuum and has established an innovative framework to facilitate this engagement. Within this framework, patient advocacy organizations play a vital role as boundary organizations between science and society, and are instrumental in defining and implementing effective patient engagement practices.
Come & join us!
Watch the video from our ECT members
Application form new member
Current members
Anne Helme
ECT Co-Chair
MS International Federation
Helga Weiland
ECT Co-Chair
South Africa MS Society
Angela White
ECT member
MS Ambassador of the National MS Society
Ainhoa Ruiz Del Agua
ECT member
Asociación de Esclerosis Múltiple de Bizkaia (ADEMBI)
Laura Belscott
ECT member
UK MS Society
Former members
Susanna van Tonder
ECT member
ADEM
Michael G. Thor
ECT member
lVersus Arthritis
Marni Hall
ECT member
IQVIA
Joanna D. Skrzypczak
ECT member
Centrum DREWS
Guy Peryer
ECT member
University of East Anglia
PwMS Engagement Coordination Team has been established following the patient engagement guidance set by MULTI-ACT, a project funded by the European Union to increase the impact of brain research. As part of their work, the team utilizes the methodology and toolset developed by MULTI-ACT to ensure the active engagement of people affected by MS throughout the research continuum.
MULTI-ACT project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 787570.
Learn more at www.multiact.eu