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Our scientific agenda

Four working groups

Working together to connect lived experience with research, clinical practice, digital health and policy.

Our four interdisciplinary groups share knowledge and coordinate their activities through the PROMS agenda. Each contributes a different perspective on how patient-reported outcomes can improve the lives of people with MS.

๐—ฅ๐—ฒ๐˜€๐—ฒ๐—ฎ๐—ฟ๐—ฐ๐—ต, ๐——๐—ฒ๐˜ƒ๐—ฒ๐—น๐—ผ๐—ฝ๐—บ๐—ฒ๐—ป๐˜ ๐—ฎ๐—ป๐—ฑ ๐—ฉ๐—ฎ๐—น๐—ถ๐—ฑ๐—ฎ๐˜๐—ถ๐—ผ๐—ป
๐—–๐—น๐—ถ๐—ป๐—ถ๐—ฐ๐—ฎ๐—น ๐— ๐—ฎ๐—ป๐—ฎ๐—ด๐—ฒ๐—บ๐—ฒ๐—ป๐˜
eHealth
๐—›๐—ฒ๐—ฎ๐—น๐˜๐—ต๐—ฐ๐—ฎ๐—ฟ๐—ฒ ๐—ฆ๐˜†๐˜€๐˜๐—ฒ๐—บ๐˜€ ๐—ฎ๐—ป๐—ฑ ๐—ฃ๐—ผ๐—น๐—ถ๐—ฐ๐—ถ๐—ฒ๐˜€
Working group 1

WG1

Research, development and validation

Explore WG1
Working group 2

WG2

Clinical management

Explore WG2
Working group 3

WG3

Digital health

Explore WG3
Working group 4

WG4

Healthcare systems and policies

Explore WG4
PROMS โ€” A Joint Global Initiative

Empowering patients.
Improving research and care.

Bringing patient perspectives into multiple sclerosis research, treatment and care.

Explore PROMS

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A joint global initiative

Jointly led and coordinated byEuropean Charcot Foundation โ†—Jointly led and coordinated byMultiple Sclerosis International Federation โ†—Lead agency for the Global MSIF MovementItalian MS Society โ†—Meet our founders โ†’
The Global PROMS Initiative brings together people affected by multiple sclerosis, researchers, clinicians, patient organisations and other stakeholders to advance outcomes that matter to people with MS.
PROMS ยท Patient Reported Outcomes for Multiple Sclerosis
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