Working group 4

Healthcare systems and policies

WG4 (Healthcare Systems and Policies) works to generate recommendations for increasing uptake of PROMs into healthcare systems. This is done to both improve patient satisfaction and prompt reflections on cost/efficacy of healthcare systems’ policies.

Know more about their work
ECTRIMS 2022 ePoster
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Strategic objectives

  • To translate standardized data into a performance measure (PRO PMs) that captures the results most important for improving long term wellness;
  • To enable PRO PM in innovative reimbursement models, regulatory frameworks as well as their clinical decision support algorithms.

PROMS Initiative interview

Usman Khan is a co-chair of PROMS Initiative Working Group 4. This group focuses on how PROMS can be integrated into policy-making processes, which is a relatively new space. Usman’s role is to understand stakeholder groups’ understanding of PROMS and to connect that to determine their interest in using PROMS for policymaking processes.

Recent activities

  • Development of semi-structured interviews at MS advocacy groups from high-income and middle-to-low income countries regarding the current uptake of PROs in their healthcare systems.