Become a member of Delphi expert panel

Dear applicant,

If you are accessing to this form, you may already be aware of what the Global PROMS Initiative is working on.

The Global PROMS Initiative brings together people living with MS, researchers, clinicians, advocacy organisations and other stakeholders to improve how the experiences and priorities of people with MS are captured and used in research, clinical care, treatment development and policy. As part of this initiative, we are conducting a Delphi study to help identify which outcomes should be prioritised in trials, research and healthcare.

By completing this form, you are expressing your interest in joining the Delphi expert panel and helping us translate the priorities of people with multiple sclerosis into scientifically meaningful outcomes.

A Delphi study is a structured process in which experts complete a series of online questionnaires, receive anonymous feedback from the group, and reconsider their views across rounds to help build consensus. If selected, you will be asked to review and rate functional domains identified as important by people with multiple sclerosis, helping us decide which should be prioritised as patient-reported outcomes for research, clinical trials, and clinical practice. We request you to check your e-mails (and your spam folder) in order to participate in the first phase of the Delphi in the coming season.

Our slogan relies on “One PROM doesn’t fit for all”.

The Delphi study will serve to translate functional domains people with MS (pwMS) have identified as important for them based on results of the survey to 5,000 PwMS globally into patient-reported outcomes (PROs). The aim of this Delphi study is to identify among 26 functional domains the most appropriate ones to become PROs in research, trials and clinical practice.

Please see our Privacy Policy to see how your data will be handled.

If you would like to be listed in the expert panel of the PROMS initiative Delphi study, please read the information provided, complete the consent procedure, and submit your responses.  

You are welcome to share this link with colleagues who have relevant expertise and may be interested in joining the Delphi expert panel.

Thank you!