WG3
eHealth
𝗪𝗚𝟯 (𝗘–𝗵𝗲𝗮𝗹𝘁𝗵) seeks to identify eHealth tools (for both active and passive remote data collection) to facilitate the adoption of PROMs in MS research, clinical trials and clinical management.
Strategic objectives
- To establish current eHealth return of investment for all the stakeholders engaged;
- To enable the long term benefits afforded to patients (active versus passive), clinicians and other stakeholders by e Health;
- To collect landscape data on the current use of PRO data collection technologies, with particular emphasis on MS-dedicated instruments.
PROMS Initiative interview
Letizia Leocani, associate professor of neurology in Milan (Università Vita-Salute San Raffaele) with expertise in technologies for monitoring and rehabilitation of people with Multiple Sclerosis, is one of the co-leaders of the eHealth Working Group (WG3) within the multi-stakeholder PROMS Initiative.
The eHealth Working Group is focused on making digital technology available to people with MS for monitoring their symptoms, function, and overall well-being. Digital tools offer not only the possibility to perform tests or fill out questionnaires but also to passively monitor without the individual being aware that measures are being collected.
Recent activities
- Development of a Landscape Analysis of available eHealth tools, methods and devices, designed and currently being tested or used to collect PROMs for MS.
- Digital health companies, organisations and projects that are employing relevant tools can apply to join the Catalogue following the instructions provided in this Invitation Letter: here